Author	Topic:   My Symtoms
Zak	posted 10/23/08 4:45 AM     I have was diagnosed with MVP about three years ago but have lived with it for at least five years. At first I didn't know what was wrong with me, and I thought I was going to die. I was miss diagnosed a few times before finally finally finding a really good heart doter. I had a Stress Test with an EKG, a Muga Scan, and a Sonogram. I am twenty five now. I struggle with this every day of my life now. I exercise every day by riding a bike for an hour and walking a bit when I feel good enough. My worst symptom is the heart jumping thing, feels like your heart stops for a beat then starts again. I get this the most just after I eat. It doesn't matter what I eat it always jumps after. I almost can't enjoy food anymore and I love good food. I never consume anything with caffeine, although I'm still trying to lose the sugar. It jumps every day, almost always for the past several years. I hate it. I have had chest pain as well and weakness. Was given script for Endaural but I don't take it, I'm very sensitive to any med's. I also have a hard time with my hands twitching when I'm trying to do manipulate complicated objects. My mouth jumps as well when I'm trying to talk sometimes, people prob think I'm crazy. Dose any one else have symptoms after eating. Or muscle twitches and jumping not in the heart ? From what I've read I guise it could have to do with dysautonomia. I'm always worried that I'm going to die even though I was told not to worry by my doc. I haven't seen the doc in over a year now. Thanks for any ones comments, and best of luck.
bruce	posted 1/13/09 11:21 PM       I have had mvp for over 40 years and the symtoms come and go. At times almost unbearable. Pretty much what you describe except for the twitching and jumping. Palpitations usually happen after a meal as well. No coffee no alcohol and working on giving up sugar. Relaxation techniques help exexercise such as walking calms the heart.Good luck.
Betty	posted 3/8/09 10:10 PM     Yes I have had those symptoms too for almost 30 years, skipping beats, very uncomfortable chest feeling like my heart is stopping too. I haven't had caffeine in 26 years and very little sugar but I do eat alot of fruit..hmmm...and I will go a day or a week or a month with no problem and then bam it comes back, sometimes every 5 minutes between episodes. so scary! atenolol doesn't help much, I am so sensitive to meds and I already have very low blood pressure I can only take a quarter of a tab that's 25mg twice a day so probably not getting enough to do any good. and yes stress or anxiety can magnify or bring on the symptoms as well. haven't tried the magnesium yet, hey, anything at this point is worth a shot........
Denise	posted 10/21/09 7:29 PM       Hey, I think Zak you may be magnesium deficient. That would explain the muscle twitching. Try transdermal magnesium, you absorb it through your skin either with foot soaks and spray it on your skin directly. I feel that as I have experimented with this disorder I feel the biggest impact is the sugar. Sugar initiates insulin response wich sets off the flight or flight if the amount of sugar enters the blood stream too fast. this means if you eat a carb eat comlex. White flour is worse on the autonomic system that table sugar. I found the most relief when I cut the sugar out which includes alcohol. I do indulge in red wine which has the lowest glycemic index. Good luck to everyone i appreciate this site because I have always felt like a freak because of this condition!
Raven	posted 3/11/10 3:57 AM       MAGNESIUM will help with muscle twitching and clonazepam will help with mvp, also Vit D-3000iu, fish oil such as shark oil, L-carnitor or it is also known as levo carnitine.
Janet	posted 4/7/10 4:34 AM     I have been dealing with MVP/D symptoms for 30 years now. I am 59 and an avid hiker and biker. I get twitchy/shaky with a wierd skin crawly feeling in my legs if I eat carbs and sometimes after exercising. Magnesium does help as well as acupunture for that. I have turned to alternative therapies over the years with great results as I can't tolerate meds at all. Ayurvedic herbs for digestion/heart have been life altering for me. I rarely have symptoms after eating if I take these herbs, and of course, eat the foods that seem to work the best for me (Paleo diet plan). Acupuncture has been helpful and Cranial Sacral has a wonderful calming effect on the Autonomic nervous system- esp the parasympathetic (rest/digest) which in our case, often gets overcome by the sympathetic ns (fight or flight.
yo6	posted 5/20/10 4:22 AM     The skipped beats use to drive me crazy and I thought I was going to die. It got so bad many years ago that my heart was skipping four beats in a row. At that point I knew I had to do something. I started taking CQ 10 which helped at the beginning. Now I take something called Cardio-Chelation. It took care of my skipped beats. If I stop taking it there come my skipped beats again. Look it up on line give it a try if you would like. I am a believer in herbs too. I've had MVP for 24yrs. I was diagnosed with it at 16!!!
Tre	posted 10/18/10 6:48 PM       I woke up this morning to a squeezing sensation. It scared the mess out of me. It only lasted for a few seconds, and I feel fine now. I was on a beta blocker, but I weened myself off of it. My palps used to scare me to death. I feel I have them under control now. I think most of my palps were do to indigestion. I stopped eating most of the food that I loved due to I would be afraid of having palpation's later. I tried ever vitamin in the book to stop my palps, and nothing seemed to work. So once I figured out the palpation's would occur more frequent when I was gassy. I began taking a pro biotic, and within a few days I felt like a new man. No gassy feeling, and NO PALPATION'S. I was feeling gassy all this morning, so I think that could be the cause of my sudden squeeze attack. I had milk last night, and I don't digest milk well. So all my fellow MVP people. Try an pro biotic it really helped me. Garlic and fish tablets are good also.
Mary	posted 11/19/10 6:55 AM       For Zak...i am in late 50's. Had mvp all my life. I feel it's a curse! Mymoms whole female family has/had it.Butmy mom lived to age 92 and only died cuz she stopped eating in the nursinghome. It bothered her all her life. Iremember her sitting in the chair leaning back and being very quiet andalways telling me "my heart is beatingin my throat." She had that particularsymptom much worse than me. I havedifferent symptoms...pounding, anxiety,skipping. That feeling in the throatarea i get once in awhile...i feel likemy heart is skipping and i FEEL it inthe throat area right where that softspot is in the middle. I mentioned itto a friend of mine and she said it wasindigestion. I said but it's Skipping!She said it only feels like it. So nexttime it happened about 15 min. after iate some fast food i sat in the car andi checked my pulse while i "felt" it"skipping" in my throat area. My pulsenever skipped a beat and YET it FELTlike it skipped in my chest! She saidit was from greasy food and that's whati ate. It happened another time and ichecked pulse again and same thing.
Lauren	posted 7/6/11 7:08 AM     ZAK, I bet you do have disautonomia. I do, and feeling like you're gonna die was a huge symptom of mine, too! and unfortunately for me, so was going to the doctor and taking meds... However, go and talk to an Mitral Valve Prolapse SYNDOME specialist. They put me on the right meds and it was a total game changer. No fears, no weird twitches, almost no more symptoms at all!! Discovering I had MVPS and not just MVP was the best thing that ever happened to me, ever. Specialists will help you more than a normal cardiologist so make sure you pick a well-informed doctor. Check out the website and see if any more of your symptoms match. I bet you'd be surprised! http://www.mitralvalveprolapse.com/home.html http://www.mitralvalveprolapse.com/home.html
Janet	posted 7/17/11 10:16 PM       Zak- when I get really really twitchy and tremory and heart jumpy, there are two reasons. One, after exercising, which goes away and doesn't affect my heart rhythm, or two, when my blood sugar is low-which DOES affect the heart rhythm. Make sure you include protein at every meal and don't go too long between meals. This is most likely to happen in the early A.M. until I eat. It's another lovely autonomic nervous system dysfuunction. :{

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